When stuck in undiagnosed purgatory

The time between the first symptoms of an illness, and the day you receive a diagnosis are strange. A lot of worries, appointments, trials and errors. People often tell their "diagnosis story", I wrote about mine, but I feel like the little details and the emotions you go through when you are searching for a [...]

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Lupus and Facing the World of Work

I wrote about my experience undertaking a postgraduate degree not long after I was diagnosed with lupus. With the degree in the bag, I have just completed an internship - my first experience of full time work since my diagnosis forced me to quit my teaching job. Of course, 5 months as an intern does [...]

Embarrassing Spoonie Moments

Ain't it fun being a spoonie? After juggling all the daily meds, doctor appointments, "normal" symptoms and worrying symptoms - sometimes it gives you an extra kick and you're left feeling red faced. Eventually you learn to shrug these things off, even laugh at the slightly ridiculous things that can only come with being a [...]

Bonjour From Brussels

Life can feel surreal at times, and these next five months I doubt will stop feeling surreal for me. I've finished my degree (minus two final essays), and I've started an internship in Brussels with the Greens. (Why I always end up in cities beginning with B I don't know...) And by Greens, I mean [...]