The time between the first symptoms of an illness, and the day you receive a diagnosis are strange. A lot of worries, appointments, trials and errors. People often tell their "diagnosis story", I wrote about mine, but I feel like the little details and the emotions you go through when you are searching for a [...]
Tag: opinion
Being Healthy in your 20s vs Being a Spoonie in your 20s
To be young, wild and free... Often a person is diagnosed with chronic illness when they are young, such as teens or twenties, aka in the "prime" of their life. This not only means you tend to be the youngest person in the doctor's waiting room by a generation or two, but it also means [...]
Bonjour From Brussels
Life can feel surreal at times, and these next five months I doubt will stop feeling surreal for me. I've finished my degree (minus two final essays), and I've started an internship in Brussels with the Greens. (Why I always end up in cities beginning with B I don't know...) And by Greens, I mean [...]
Angry, Hopeful, and Active
Photos of me as an activist: from my first demonstration against tuition fees in Leeds, 2010 aged 16, marching for refugees in Burgos, Spain 2015 aged 21, marching against Trump in Barcelona 2017 aged 22, canvassing for the Green Party for the elections in Sheffield, 2017 aged 22, collecting signatures for Amnesty in Berlin, [...]
Why living like a hermit crab simultaneously ruins you and makes you
I am currently living in my third city abroad, and moving to another next month (eee!) After, I fully intend on returning to the UK and finding one of them stable job things I've heard so much about. It will mark 3 years of unforgettable experiences. Anyone who has ever lived abroad, either permanently or [...]
Looking Back on 2017
Happy new year!! Last year I reflected on my own experience of 2016. So, I thought I'd do the same for 2017. Because why not. I'll also be focusing on the positives, because although there have been moments of fear and sadness, I like to end the year on a high note. Again, I won't [...]
Male Photographers and the Female Body
Helmut Newton - Museum fur Fotographie This is something that has been playing in my mind for a while, but I really came to reflect on it when I visited the Museum Fur Fotographie, in Berlin. The museum itself is a nice visit - it mainly displays the works of the German photographer Helmut Newton, [...]
Some thoughts on my year in the Green Party
This year was pretty exciting - I was accepted onto the Young Green's 30 under 30 scheme. Designed by the youth sector of the Green Party UK, its aim is to help teach and encourage young people to become more involved with the party and Green politics. We got to visit the European Parliament, and [...]
Tips for being a student with lupus
I feel really lucky that four months after my diagnosis I was able to begin my masters degree in a foreign country - not everyone gets that pleasure. Often lupus forces people to quit school or university, with hope of maybe returning when things are a little better. I, however, am a stubborn individual, so [...]
Is ‘The Girl Who Travels’ the new Manic Pixie Dream Girl?
I've seen circulating on the internet that there are quite a few articles about "Date the girl who travels", or "Don't date the girl who travels" - ironically promoting the same idea: a girl who travels is the girl of your dreams, but she will only be in your dreams if you can't keep up [...]