Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It’s had some ups and downs – A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds.
But looking back, I’m so pleased things have gone well since my diagnosis. Things could be worse, they can always be worse. I have a fun life, amazing friends and a supportive family. I can laugh at lupus even when it annoys me.
Just for kicks, here are common thoughts I have regarding having an autoimmune disease:
Do I have to get up?
My bones hurt, how can bones feel pain?
Omneprazol before food…
I don’t feel like breakfast…
No Facebook, I don’t want to see photos of me before the prednisone
I used to hate those photos…look at my face now
You’d think after a while I wouldn’t choke whilst swallowing multiple pills at a time…
Urgh I want a nap
Argh, nearly forgot SPF
Should I bother with foundation, or rock the butterfly rash?
Do I have my keys?
What else do I need?
My right hip hurts again, is this normal now?
Did I take my meds?!?
Oh yes I did, they tasted horrible
Can I eat lunch yet?
*Taking notes* Did that really just take me 5 attempts to spell…
Is this brain fog, or am I just becoming stupid?
Oh my god what is that person’s name…
So proud of making a healthy lunch
I want coffee…
It’s been an hour since lunch, why am I hungry again?!
Knee joints are hurting, need to stretch
I deserve a snack.
Want crisps. Can’t have crisps.
Need to remember to bring snacks with me. Carrots. Protein balls.
Need to make protein balls…
My stomach has become a bottomless pit
What shall I make for dinner?
Can it just be avo on toast? I’m sleepy…
Need to drink more water
Might actually fall asleep by 11…
Argh, nearly forgot my night meds
Why do I feel awake now?
2 thoughts on “My Daily Thoughts as a Spoonie”
Haha this was awesome! How did you know?! Its like you are in my head…similar daily questions 😊
Haha I’m glad it can resonate with you!