You Know You’re a Spoonie When…

Disclaimer: I know some people don't like the term spoonie, because they find it belittling or that the spoon theory doesn't fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can't. But anyways, [...]

Snapchatting a Spoonie Day

I've been back in the UK since Monday, and have been feeling pain in the chest since, which at first I thought were asthma related, but it felt similar to pericarditis (inflammation of the heart), so I went to the GP this morning. Sending a random snapchat because I was sulking about being back in [...]

I have a Masters degree!

Disclaimer: I actually still have my dissertation to complete before my degree is official, but we had the ceremony anyway so had to celebrate. Yes, despite another 10,000 words to write about human rights in the Middle East, and an extra semester in Berlin for the fun of it, my degree is complete! I can't [...]

3 Years, 3 Faces

Okay so in the last photo I had been drinking so it’s not the most flattering… But this is a comparison of my face from 2015, 2016, and 2017, all from around the same time of the year. In other words, pre-diagnosis of lupus, when I was on about 40mg of steroids, and nowadays when [...]

Little Lupie Essentials

Coffee Not the healthiest of options/recommended by doctors and nutritionists, but let's face it, with chronic fatigue and the days when just getting breakfast or taking a shower can drain you of all energy, a good strong coffee is needed and well-deserved. Other options like herbal tea, gentle exercise (maybe just a walk!) or even [...]

My Daily Thoughts as a Spoonie

Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It's had some ups and downs - A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I'm so pleased things have gone well since my diagnosis. Things could be worse, [...]

The perks of having lupus

Okay, so it's not great having an incurable, life threatening, life changing disease that can control your life and ambitions, affect your relationships and can make day to day life a struggle. It actually sucks. It's even worse when you feel like people don't understand, which is a top complaint from anyone living with a chronic [...]