Tag: personal

  • You Know You’re a Spoonie When…

    Disclaimer: I know some people don’t like the term spoonie, because they find it belittling or that the spoon theory doesn’t fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can’t. But anyways,…

  • Tips for being a student with lupus

    I feel really lucky that four months after my diagnosis I was able to begin my masters degree in a foreign country – not everyone gets that pleasure. Often lupus forces people to quit school or university, with hope of maybe returning when things are a little better. I, however, am a stubborn individual, so…

  • I have a Masters degree!

    Disclaimer: I actually still have my dissertation to complete before my degree is official, but we had the ceremony anyway so had to celebrate. Yes, despite another 10,000 words to write about human rights in the Middle East, and an extra semester in Berlin for the fun of it, my degree is complete! I can’t…

  • 30 Things About My Invisible Illness You May Not Know

    In celebration of World Lupus Day, I have answered these questions that were originally used in blogs for invisible illness week. They’re a bit of fun, and a good way to show how living with chronic illnesses is different for everyone! 1. The illness I live with is:  Systemic Lupus Erythmatosus. An autoimmune disease in…

  • My Daily Thoughts as a Spoonie

    Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It’s had some ups and downs – A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I’m so pleased things have gone well since my diagnosis. Things could be worse,…

  • Tips on Saving Money

    I like to think I’m pretty good at saving. During my undergrad I was putting money aside to travel to Brazil a few times, and I was still saving a decent amount annually. This has really helped for this year, now I’m only studying and not working, and living off family help rather than a…

  • The perks of having lupus

    Okay, so it’s not great having an incurable, life threatening, life changing disease that can control your life and ambitions, affect your relationships and can make day to day life a struggle. It actually sucks. It’s even worse when you feel like people don’t understand, which is a top complaint from anyone living with a chronic…

  • A Personal 2016 in Review

    Let’s not talk about 2016 in the general sense. I think most agree that 2016 was a disaster of a year in terms of politics and celebrity deaths (and lets not forget the horrors of Syria and refugees that are not close to being resolved). I’m going to talk about my own 2016. Specifically the…

  • Little Things I Miss About Britain…

    I love living in Spain, I love the culture, the lifestyle, and that I feel like it’s made me a warmer person (ish…) But I also am very stereotypically British, and no matter how amazing our adopted country is, there are always some little things that can make you homesick… I wrote a similar post about a…

  • You’re not a Jane Austen character, you can be happy single

    I like to think that I’m not overly cynical about relationships, they’re worth it when they’re good. It warms my heart seeing my friends in love and happy. But when some people like to hop from one to another, to me that seems to take away the meaningfulness of each relationship. Those people seem to be…