You Know You’re a Spoonie When…

Disclaimer: I know some people don't like the term spoonie, because they find it belittling or that the spoon theory doesn't fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can't. But anyways, [...]

Tips for being a student with lupus

I feel really lucky that four months after my diagnosis I was able to begin my masters degree in a foreign country - not everyone gets that pleasure. Often lupus forces people to quit school or university, with hope of maybe returning when things are a little better. I, however, am a stubborn individual, so [...]

I have a Masters degree!

Disclaimer: I actually still have my dissertation to complete before my degree is official, but we had the ceremony anyway so had to celebrate. Yes, despite another 10,000 words to write about human rights in the Middle East, and an extra semester in Berlin for the fun of it, my degree is complete! I can't [...]

My Daily Thoughts as a Spoonie

Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It's had some ups and downs - A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I'm so pleased things have gone well since my diagnosis. Things could be worse, [...]

Tips on Saving Money

I like to think I'm pretty good at saving. During my undergrad I was putting money aside to travel to Brazil a few times, and I was still saving a decent amount annually. This has really helped for this year, now I'm only studying and not working, and living off family help rather than a [...]

The perks of having lupus

Okay, so it's not great having an incurable, life threatening, life changing disease that can control your life and ambitions, affect your relationships and can make day to day life a struggle. It actually sucks. It's even worse when you feel like people don't understand, which is a top complaint from anyone living with a chronic [...]