I've been back in the UK since Monday, and have been feeling pain in the chest since, which at first I thought were asthma related, but it felt similar to pericarditis (inflammation of the heart), so I went to the GP this morning. Sending a random snapchat because I was sulking about being back in [...]
Tag: systemic lupus erythematosus
I have a Masters degree!
Disclaimer: I actually still have my dissertation to complete before my degree is official, but we had the ceremony anyway so had to celebrate. Yes, despite another 10,000 words to write about human rights in the Middle East, and an extra semester in Berlin for the fun of it, my degree is complete! I can't [...]
3 Years, 3 Faces
Okay so in the last photo I had been drinking so it’s not the most flattering… But this is a comparison of my face from 2015, 2016, and 2017, all from around the same time of the year. In other words, pre-diagnosis of lupus, when I was on about 40mg of steroids, and nowadays when [...]
Little Lupie Essentials
Coffee Not the healthiest of options/recommended by doctors and nutritionists, but let's face it, with chronic fatigue and the days when just getting breakfast or taking a shower can drain you of all energy, a good strong coffee is needed and well-deserved. Other options like herbal tea, gentle exercise (maybe just a walk!) or even [...]
30 Things About My Invisible Illness You May Not Know
In celebration of World Lupus Day, I have answered these questions that were originally used in blogs for invisible illness week. They're a bit of fun, and a good way to show how living with chronic illnesses is different for everyone! 1. The illness I live with is: Systemic Lupus Erythmatosus. An autoimmune disease in [...]
My Daily Thoughts as a Spoonie
Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It's had some ups and downs - A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I'm so pleased things have gone well since my diagnosis. Things could be worse, [...]
Who says lupus can’t look good? HA..
Currently half way through a trip to Portugal! It is super sunny and warm so I'm applying suncream a few times a day, and I bought this "stylish" hat to protect me from the suns rays and avoid becoming ill ill, as the sun can leave me with extra fatigue and joint pain and I [...]
Lupus Beauty
It often feels like lupus and beauty do not go hand in hand. Before I was diagnosed I was rather okay with my physical appearance. Never 100% happy, always finding faults, but I felt like I could talk to guys with confidence and enjoy taking a selfie from time to time (priorities...) All that changed when [...]
Easy, Healthy Meals
Everybody wants to eat healthier - it makes you feel much more alert, proactive, and generally better both physically and mentally. And when you have a chronic illness, such as lupus, eating healthy is more important than ever. You need protein, iron, vitamins, omega 3, everything basically that isn't high in salt, sugar, or fat. [...]
So I’ve Been Diagnosed with Lupus…
Story time! This might be a long one, with a bit of whinging so I will understand if you skip this post! During the winter of my last year at uni, I became concerned when I started developing joint pain and swelling that would come and go in pretty much all my joints. The pain [...]
Inside a Mind 