Snapchatting a Spoonie Day

I've been back in the UK since Monday, and have been feeling pain in the chest since, which at first I thought were asthma related, but it felt similar to pericarditis (inflammation of the heart), so I went to the GP this morning. Sending a random snapchat because I was sulking about being back in [...]

Tips for being a student with lupus

I feel really lucky that four months after my diagnosis I was able to begin my masters degree in a foreign country - not everyone gets that pleasure. Often lupus forces people to quit school or university, with hope of maybe returning when things are a little better. I, however, am a stubborn individual, so [...]

3 Years, 3 Faces

Okay so in the last photo I had been drinking so it’s not the most flattering… But this is a comparison of my face from 2015, 2016, and 2017, all from around the same time of the year. In other words, pre-diagnosis of lupus, when I was on about 40mg of steroids, and nowadays when [...]

Little Lupie Essentials

Coffee Not the healthiest of options/recommended by doctors and nutritionists, but let's face it, with chronic fatigue and the days when just getting breakfast or taking a shower can drain you of all energy, a good strong coffee is needed and well-deserved. Other options like herbal tea, gentle exercise (maybe just a walk!) or even [...]

My Daily Thoughts as a Spoonie

Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It's had some ups and downs - A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I'm so pleased things have gone well since my diagnosis. Things could be worse, [...]

The perks of having lupus

Okay, so it's not great having an incurable, life threatening, life changing disease that can control your life and ambitions, affect your relationships and can make day to day life a struggle. It actually sucks. It's even worse when you feel like people don't understand, which is a top complaint from anyone living with a chronic [...]

Lupus Beauty

It often feels like lupus and beauty do not go hand in hand. Before I was diagnosed I was rather okay with my physical appearance. Never 100% happy, always finding faults, but I felt like I could talk to guys with confidence and enjoy taking a selfie from time to time (priorities...) All that changed when [...]

Life with Lupus (as told by pictures off the internet)

I decided to write a Buzzfeed style article about having lupus. They are pretty great at creating funny but insightful posts about living with different illnesses, both physical and mental. They've covered chronic illnesses a lot, and it's great being able to see people sharing the same pains also able to share the same humour. [...]