Inside a Mind

Tag: Chronic

  • Quotes for when you’re feeling a bit shit

    Literature is life. Or at least, a huge part of life. It’s a way to escape, a way to be aware, a way to learn about yourself, and a way to learn about others. It can inspire you, calm you, upset you and even frustrate you. It is also origin of some of the best,…

  • You Know You’re a Spoonie When…

    Disclaimer: I know some people don’t like the term spoonie, because they find it belittling or that the spoon theory doesn’t fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can’t. But anyways,…

  • Snapchatting a Spoonie Day

    I’ve been back in the UK since Monday, and have been feeling pain in the chest since, which at first I thought were asthma related, but it felt similar to pericarditis (inflammation of the heart), so I went to the GP this morning. Sending a random snapchat because I was sulking about being back in…

  • Tips for being a student with lupus

    I feel really lucky that four months after my diagnosis I was able to begin my masters degree in a foreign country – not everyone gets that pleasure. Often lupus forces people to quit school or university, with hope of maybe returning when things are a little better. I, however, am a stubborn individual, so…

  • I have a Masters degree!

    Disclaimer: I actually still have my dissertation to complete before my degree is official, but we had the ceremony anyway so had to celebrate. Yes, despite another 10,000 words to write about human rights in the Middle East, and an extra semester in Berlin for the fun of it, my degree is complete! I can’t…

  • 3 Years, 3 Faces

    Okay so in the last photo I had been drinking so it’s not the most flattering… But this is a comparison of my face from 2015, 2016, and 2017, all from around the same time of the year. In other words, pre-diagnosis of lupus, when I was on about 40mg of steroids, and nowadays when…

  • Little Lupie Essentials

    Coffee Not the healthiest of options/recommended by doctors and nutritionists, but let’s face it, with chronic fatigue and the days when just getting breakfast or taking a shower can drain you of all energy, a good strong coffee is needed and well-deserved. Other options like herbal tea, gentle exercise (maybe just a walk!) or even…

  • 30 Things About My Invisible Illness You May Not Know

    In celebration of World Lupus Day, I have answered these questions that were originally used in blogs for invisible illness week. They’re a bit of fun, and a good way to show how living with chronic illnesses is different for everyone! 1. The illness I live with is:  Systemic Lupus Erythmatosus. An autoimmune disease in…

  • My Daily Thoughts as a Spoonie

    Today marks one year since the doctor confirmed that I have lupus. Happy anniversary to me! It’s had some ups and downs – A&E, multiple doctors, medicine increases and decreases, so many blood and urine tests, and countless colds. But looking back, I’m so pleased things have gone well since my diagnosis. Things could be worse,…

  • Who says lupus can’t look good? HA..

    Currently half way through a trip to Portugal! It is super sunny and warm so I’m applying suncream a few times a day, and I bought this “stylish” hat to protect me from the suns rays and avoid becoming ill ill, as the sun can leave me with extra fatigue and joint pain and I…